KGVP is a non-profit patient organisation focussed
on better quality of health care according to patients
better health care comes from insight
insight comes from measurements
ICHOM provided the framework with standard sets
promis health measures developed the Measurements
KGVP foundation built the ce-marked mobile app: easyrom
* = EasyROM PRO comes with a dashboard, to provide additional features and more in-depth insight into the measurement results.
WHY WE DO AS WE DO AND HOW
Our vision
"Every patient has insight and overview in their health care treatment outcomes."
Patients are people and have many human rights. KGVP believes that proper health care is one of those human rights, but to know what proper health care is, is not real easy, let alone to find proper health care.
For that patients need information and knowledge, so they can find their individual match, best fit for their personal cases.
Our mission
The KGVP Foundation is a Dutch non-profit patient organisation, founded in 2010, to stand up for the patients. We are also patients, victims and care takers. We understand the problems medical issues cause. We know patients are most vulnerable when they are sick.
But we don't grovel, grief and stop. We stand up and do something about it. For all patients, including ourselves, with the best science, support and tools available. It is our mission to maximise everyone's Health Related Quality of Life (HRQoL), so wel all can just live good.
Our principles
Screenshot of the Dutch EasyROM Pro version: Physicial Function Questionnaire Outcome graph
KGVP Foundation always considers the ethics and morals in their own and their partners' actions. It is the motivations and intentions, that will explain the actions. This way KGVP eliminates any perverse incentives, that would interfere in enhancing and increasing Health Related Quality of Life for patients. In other words, if your heart and mind is pure, then so are your actions and the road will be smooth and blissful.
KGVP considers science and facts as undeniable truths, therefor, we seek the truth, even if it does not count in our favour. We will adjust and implement our actions to harness the power of the truth. We hold ourselves to the highest possible standards, so we never look back in fear or regret. This way, we can never have regrets of our actions and decisions. You are the right partner for us, if you feel the same way.
KGVP takes its responsibility role very seriously. An example of this is to not pick and choose which questionnaires/Item Banks are released to only a certain group. We have opted to take our responsibility and release all questionnaires and Item Bank to all people in the world and only doing a selection based on language, which is only limited by resources. It is this way we can work responsibly and honestly.
KGVP considers science and facts as undeniable truths, therefor, we seek the truth, even if it does not count in our favour. We will adjust and implement our actions to harness the power of the truth. We hold ourselves to the highest possible standards, so we never look back in fear or regret. This way, we can never have regrets of our actions and decisions. You are the right partner for us, if you feel the same way.
All of this, is powered by PROMIS, the most modern and scientifically proven and validated system for Routine Outcome Monitoring and Outcome Measurements. PROMIS stands for Patient Reported Outcome Monitoring Information System and is setup by USA's top tier medical institution, the NorthWestern University via a NIH grant of 110 million USD in 2004. Since then, over 2000 papers have been published, proofing its validity and reliability.
Made by physicians and scientist, used clinically and recommended in the medical HEDIS 2020 guidelines and used by the ABOS (American Board of Orthopaedic Surgery) as outcome monitoring tool for certification. (https://www.abos.org/certification/part-ii/patient-reported-outcomes/)
One of our mantra's
Mental Health Care is a discipline in health care that plays a major part in a good Quality of Life.
To have a good mental health, it requires clear insight and overview for knowledge on progress, quality and effectiveness in treatments delivered for illness symptoms that are not necessarily measured directly like cholesterol levels or blood pressure, but for more indirect health indicators, like depression and anxiety.
To acquire this knowledge, PROMIS is designed to quantify that knowledge and Easyrom as a measurement tool is the right tool for patients to acquire the measurements and give patients and professionals that valuable insight in quality anf performance of the treatments given.
Social health as a health domain factor is often underestimated as contributor to Quality of Life and Health care.
But patients as being highly social entities, rely greatly on social (and economic) factors that contribute to mental and physical health. Education, employment, income, family/social support and community safety are factors that influence mental and physical health (and vice versa).
Treatments given to recover from symptoms and dysfunction, can be more easily measured using EasyROM as PROMIS measurement instrument. This way the HRQoL and the health care construct are linked with each other.
The EasyROM Platform
The EasyROM Platform comprises all the elements, that are beneficial for in-house patients, out-house patients, self-care patients, physicians, academics, pharmaceuticals, (local) governments, employers, employees, insurers, basically everybody that want to know, for themselves or for their workers/students, how their health state is and if they need to seek medical help.
Please contact us
Stichting KGVP (KGVP Foundation).
Postal address:
Marconistraat 26
2665 JE Bleiswijk
Visits on appointment only please
Phone number: +31 6 24245402
E-mail: info@kgvp.org
