KGVP Foundation is a Dutch non-profit patient organisation since 2010. The abbreviation KGVP stands for Kwaliteit Gezondheidszorg Volgens Patiënten, which is Dutch for "Quality of Health Care According to Patients".
It is our mission to elevate, increase, improve the quality of health care as patients need and require in a patient-centered, fair, honest and purpose-driven way. To accomplish our mission, it is imperative to discover all perverse incentives that stand in the way of that and erode the possibilities to help patients with integrity and honesty.
KGVP has proven an honest, transparent and fair solution is possible to distribute and implement the PROMIS® Health measure system and still being economically viable and commercially unattractive. Purpose-driven and not Profit-driven focus makes this possible, as patients and health care are not corporate cash cows for share holders.
PROMIS® is a huge collection of digital questionnaires, commissioned by the NIH, US Government's National Institutes of Health with the aim to mainly re-engineer the clinical research enterprise with research teams. KGVP has made PROMIS® consumable for everybody in the easiest and cheapest way possible: 100% free for all patients. Health care providers pay a a cost-covering price fixed price of €2,50 per patient per year, which includes a management console dash board with free and unlimited access to raw measurement data for research.
"The clinical outcomes research enterprise would be enhanced greatly by the availability of a psychometrically validated and dynamic system to measure PROs in a wide range of chronic diseases”
ASCQ-Me, the Adult Sickle Cell Quality of Life Measurement Information System, PROMIS, Patient-Reported Outcomes Measurement Information System, NIH Toolbox for the Assessment of Neurological and Behavioral Function, and their logos are marks owned by the U. S. Department of Health and Human Services.
The Health Measures Systems built into EasyROM app are a comprehensive set of digital intelligent questionnaires, divided over 4 systems:
PROMIS®
Especially suited for adults, parents and children (general population and those living with a chronic condition.)
PROMIS® measures are self-reported intellligent digital questionnaires for measuring global, physical, mental, and social health.
Neuro-QoL™
Especially suited for adults and children living with a neurological condition.
Neuro-QoL™ measures are self-reported and proxy-reported intelligent digital questionnaires for physical, mental, and social health.
ASQ-Me®
Especially suited for adults living with sickle cell disease.
ASCQ-Me® measures are Self-reported intelligent digital questionnaires for measuring physical, mental, and social health.
NIH Toolbox®
Especially suited for adults and children (general population and those living with a chronic condition.)
NIH-Toolbox® measures are performance tests of cognitive, motor, and sensory function and self-reported measures of emotional function.
Read about our activities, programmes and initiatives.
We honour and recognise the people, institutes and organisations, that make health care work and run smoothly. Especially the health care professionals and providers. This is why we have our outreach programmes, to collaborate, work together on finding common grounds to work for better health care for patients.
Our EasyROM Programme is awarded prestigious prizes in the last few years.
Stichting KGVP (KGVP Foundation).
Visiting and postal address:
Marconistraat 20
2665 JE Bleiswijk
Visits on appointment only please
Phone number: +31 6 29506200
E-mail: info@kgvp.org
Stichting KGVP (KGVP Foundation).
Postal address:
Marconistraat 20
2665 JE Bleiswijk
Visits on appointment only please
Phone number: +31 6 29506200
E-mail: info@kgvp.org